MONDAY MORNING HOLLYWOOD
Kourtney Najjar is eight years old and has spent most of her life in the hospital.
She has nurogenic pseudo obstruction which has caused intestinal failure; opteopenia, which causes her bones to become brittle and break easily; and chronic anemia, resulting in the need for frequent blood transfusions. Kourtney is dependent on a TPN 100%, meaning her only nutrition is through her veins, and a central line is running into her heart for nutrition and meds. Kourtney is also strong, happy and full of life and sparkle. She is brave, inspiring and a huge movie and TV buff. Kourtney’s touchstone is Peter Pan and her emotional lifeline is her family and
Hollywood. If you could wrap a superhero attitude up with the smile of the most powerful princess you would have what best describes this amazing young lady.
What is your favorite TV show?
The Disney Channel. I like to make my mom crazy. I watch it all the time and won’t let her watch her shows in the hospital. I like Wizards of Waverly Place. For Halloween my mom and I were the “Witches of Westwood.” I also like Good Luck Charlie, Suite Life On Deck, Hannah Montana Forever, and the new show Shake It Up is good too.
What is your favorite movie?
Who is your favorite character or actor and why?
On TV my favorite is Selena Gomez. I like her songs and she is funny on Wizards. And Peter Pan. When I go to
Disneyland I love him and Wendy is my best friend. They make me happy and I love them. I met them on my wish from the Make a Wish Foundation. I love them both.
What is your favorite song from a movie or TV show?
Best of Both Worlds from the Hannah Montana Movie and You Can Fly from Peter Pan. They sing it when they are flying past Big Ben in
What is a typical day in the life of Kourtney?
Answered by Mom: Kourtney is hooked to pumps 24/7. Right now she has an open belly so she also has to be on a suction machine. Kourt sleeps a lot. She has pain most days, but she keeps going no matter what. We try to make things as “normal” as we can for her. She has school work from 11am-12noon, then she watches TV and movies. At 3pm she has physical therapy to re-learn how to walk. After that Kourtney usually requires a dressing change on her belly, which is hard because it hurts.
Kourtney likes to play games or work on an art project in the afternoons when she has the energy. On good day she will ride in a wheelchair for an hour or so and visit her friends here at the hospital. Kourtney usually goes to bed around 7 or 8pm.
That’s the day. Very different and very much the same. There are doctors and nurses in and out all day and pumps that beep all the time. Kourtney watches lots of TV and movies right now because she spends so much time in bed. That’s what makes her happy while she’s waiting for a second multi organ transplant.
What is your dream?
I already had my dream. I met Peter Pan and Wendy.
What or who makes you laugh?
TV makes me laugh.
Milo on Fish Hooks makes me laugh.
What inspires you?
My mom’s friend Rachel Burney inspires me. She stays with me Wednesday nights. She does hair and when all my hair was falling out she colored mine pink. I also want to do gymnastics and cheer like my sisters when I have my transplant. That’s inspiring.
What advice do you have for filmmakers and studios making movies and TV shows for kids?
There is too much Tinkerbell stuff. I think they need more Peter Pan. He is the Hero. Also I don’t like when animals get hurt or sick or lost. I think there should be a girl hero too. Girls are not just princesses.
What is you biggest wish for 2011?
To get my transplant and have Peter Pan go with me to the OR. I also want a Hangman’s Tree House built at my house so I can play in it when I get home after my transplant…Because this time is going to be a good transplant, the perfect one.
To learn more about Kourtney and make a contribution her Non-Profit Organization Kourt’s Krew visit www.kourtskrew.com
To learn more about or order Diagnosing Kourtney: One Family’s Journey written by Kourtney’s mom Laura Najjar visit