This was a series relative to Brain Injury Survivor Recovery Horror stories – to be followed by Brain Injury Survivor Recovery Angel Unaware stories. The series was meant to inform and educate. Hopefully, Caregivers are provided further information to understand the learning curve ahead of them, which is unlike any they have seen before.
The initial Brain Injury Survivor Recovery Horror stories resulted in claims of defamation of character, sensationalism by the author, extended glowbass.com to be a click-for-hits publication, and requested stories to be pulled where the storyline presented considerations for readers to ponder independently. Along with the claim of character assassination – came requests to remove content (censor) within a week in order to avoid litigation. Stories shared in this series “are not” directed towards “any one” brain injury treatment center, rather depict a smattering of stories shared by Families, Friends, Caregivers, Conservators, Guardians, Doctors, Nurses, and Staffs of Brain Injury Survivor Treatment Centers, Rehabilitation Centers, and Hospitals.
Forthcoming stories will share brain injury survival tips, sharing positive findings and support mechanisms to help the Brain Injury Survivors, Family, Friends, Guardians, Caregivers and Conservators. These insights will provide Wounded Warriors and their families with information so they do not become subject to the demarcation of brain injured chattel.
The Examiner does not subscribe to the claims of defamation of character or sensationalism by the treatment center who requested censorship; however, to keep the peace we removed stories in this series, which they felt contained information directly associated with their business.
Post-hospital Treatment Centers
In America, we believe we havestate-of-the-art medical facilities. We further believe our physical therapy and recovery centers must be amazing. We see quality care in movies all the time right? So when we have to transition the care of our loved one to a brain injury rehabilitation setting we presume the best – we enter this industry wearing blinders of love feeling shielded in our belief of the greater good. We trust and have faith in Clinicians and their Staffs.
Our language transforms from patient to Client, from loved one to TBI Survivor, from recoveries’ to ongoing treatment requirements. At some point in the healing process we learn our Survivor is perhaps involved in a lifetime of medical treatments and therapies with a suite of doctors: physiatrist, neuropsychologists, neurologists, etc.
Not what we had intended for our lives or those of our loved ones, but altruism sounds wonderful on paper – we believe quality therapy can save the day. And, while it should be wonderful – the brutal fact is, this is a $100 billion dollar industry – do not forget the brutality of reality, which is an unfortunate aspect of the brain injury industry. Therapy and quality are not necessarily one in the same. That movie set physical therapy setting is non-existent. In its place is something more aligned to a high school gym with some missing balls and torn netting. Treatment centers largely are not state-of-the-art and it is not unusual to hear center staff say, “Our center may not be perfect, but it is better than most, imagine what your Client would suffer at another location.” This type of commentary is not uncommon in this under-regulated industry, which does not make Families, Friends, Guardians, Conservators or Caregivers of Brain Injury Survivors feel better. Just how is…”We are better than most” supposed to feel to the Brain Injury Survivor support circle? Are they supposed to be thankful the imperfections aren’t quite as bad as other imperfections? Is that the bar of success for this under-regulated industry? Survivors think not.
For the average Client in a treatment center daily room and board is approximately $500.00 to $1000.00 per day. This is achieved through direct billing or indirect billing with add-ons for incidentals so the “marked fee” may be $800.00 a day, but incidentals drive those fees to $1000.00 plus. Across the board this ranges between $800.00 and $1200.00 for three squares and a cot – some centers include therapy in their daily fees. This does not mean fluff or frills – this does not “routinely” include the therapy, recreation, outings, etc. This is just for a “room” and for “meals.” (Please note this is a generalized cost analysis and not center or facility specific.)
Just think what Caregivers, Conservators, Guardians, Family, Friends and the Brain Injury Survivor themselves could do with $500.00 to $1000.00 per day.
Top-ranked Rehabilitation Centers – Do They Really Exist?
Many “top-ranked” rehabilitation centers are a disappointment. Many feature environs as regimental as, but less fashionable than, old-school military barracks. In some, their lifetime Clients seem to just mosey around with nothing to do. The smoking lounge is where all Clients seem to stay for hours on end. Numerous facilities have smoking stations where no matter the day, night, or weekend – the same souls will be smoking one continuous lifelong cigarette. At every visit – the same Clients are smoking no matter the date or hour.
For $500.00 – $1000.00 per day, Clients often suffer the humiliation of use of furniture obtained from motel | hotel close-out (this is more frequent than one might think). These furnishings would not darken the Friend, Family, Guardian, Conservator or Caregiver living arrangement for their Clients where “zero supporting funds are at their fingertips”; yet, many treatment centers present their settings as qualitative. Largely, life for the Survivor in a treatment setting equates to substandard living conditions. There are facilities with nice environments, which often pose unique issues due to more business-minded management with a seemingly higher than average court- or Guardian-appointed Client community ratio – good reason to do grounds-keeping. Conversely, has to be conceded here, also a good reason to have a higher appointment ratio, due to the quality setting for living. If a Brain Injury Survivor is remanded to a life-long treatment center regime – it should at the very least be a quality environment, which is what many Friends, Families, Guardians, Conservators, Guardians and Brain Injury Survivors defer to in their decision-making.
When the TBI Survivor is in the care of a treatment center – Staffs often rifle through belongings and stealing is not uncommon. When this is brought to the attention of management, Staffs are always supported first and foremost. The response from most every treatment center will remain, “Client misrepresents facts, suffers short-term memory issues, absence of mind, or manipulates their setting.” Clients are “never” believed first and foremost. Blaming the Client is the most frequent excuse for loss of Client belongings or any other need for Client Advocacy. Family, Friends, Guardians, Conservators or Caregivers can notate their Brain Injury Survivor’s setting and learn for certain when | where Staffs steal, but even with proof – treatment centers blame Clients. It is another of the long line of abuses Clients suffer post-injury.
Quotes in this story are direct quotes from industry workers – these are not permissioned – therefore names remain hidden.
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